ADENOMYOSIS ADVICE ASSOCIATION
Advice Support and Information about Adenomyosis
About the Adenomyosis Advice Association
Founded by Danielle Russell in the United Kingdom in 2011, the Adenomyosis Advice Association serves as a dedicated free resource for women seeking support and treatment for the symptoms of adenomyosis.
The Association bridges the gap between clinical research and personal experience, promoting a deeper understanding of adenomyosis and the importance of seeking a diagnosis and support in order to preserve fertility,
health and wellbeing.
Each April we highlight our global campaign April is Adenomyosis Awareness Month during which we strive to ensure Association members and those with symptoms of adenomyosis seek professional support.
We offer a wider online community that is available 24/7 happy to discuss and share their experiences and a clinical network that reaches worldwide sharing and encouraging research, highlighting improved treatments and learning.
Campaign Year 16:
April is Adenomyosis Awareness Month
AWARENESS. SUPPORT. EDUCATION.
VIRTUAL TOOLKIT
NEW for 2026: We are currently curating a self-advocacy toolkit designed to support and provide essential information.
COMMUNITY EVENTS
The association is planning a series of virtual seminars and support workshops to foster compassionate dialogue and ensure individuals have access to a reliable advocacy network.
INTERNATIONAL ADVISORY
We actively engage with healthcare providers and national health committees to promote uterine health understanding and secure consistent clinical focus on adenomyosis year-round.
Common Symptoms of Adenomyosis
Living with persistent uterine discomfort can be overwhelming, but recognising these signals is the first step toward reclaiming your well-being. You are not alone, and understanding these common experiences can help you advocate for the care you deserve.
- Early onset of unexplained pelvic pain in childhood
- Sudden headaches and migraines
- Lengthy heavy menstrual bleeding
- Severe menstrual cramping, chronic unexplained hip, leg, lower pelvic and abdominal pain
- Persistent abdominal bloating worsening during the day
- Pain during menstrual cycle, spotting and cramping following sexual intercourse
- General immunological issues, anaemia, low iron stores, fatigue and exhaustion
- The above symptoms coinciding with other systemic issues including gynaecological
- health conditions such as fibroids, endometriosis, polycystic ovaries and bladder incontinence
Support for
Every Step of Your Journey
Advice Support and Information about Adenomyosis
Our Global
Community
Our supporters and visitors connect from around the globe to foster awareness and uterine health advocacy.
SUPPORTING AND NETWORKING across 6 continents